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Medical Privacy College Term Paper
Privacy is a very complex concept that
needs to be fully examined and understood before one can actually define it.
Recently, many proposals to protect privacy have been put forward without a
clear idea of what privacy really is. For an individual, privacy is the
simple right "to be left alone."1 This explanation is not very concrete
since it covers some aspects of privacy like prevention against physical
violations such as robbery and trespass; however, permits violation by
observation.
What is medical Privacy?
To understand the concept of ‘medical privacy’, it is important to examine
the kinds of information that falls under the category of medical
information. Since health is extremely vital to our lives, a great deal of
information falls under the ‘medical’ category. This can give the term
‘medical privacy’ a very broad definition: so much that it could even
prevent lifesaving and advantageous uses of information.
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Medical information can cover a broad range of information: from the fact
that a person has a common cold, to the fact that a person has a fatal
sexually transmitted disease. Often a wide range of personal information is
required for the treatment of a certain disease. This information may
include the patient’s behaviors, sexual preferences, medical history, and so
on. Often, some information that is normally not private or sensitive is
also needed, for example, race, body type, physical appearance, and so on.
Private Health Information
Mental health Information is perhaps the most sensitive medical information.
Though much work is being done to reduce the disgrace associated with mental
illnesses, socially they are still associated with aggression and
incompetence. In the past, people were deprived even of their basic legal
right just because they were proclaimed to be mentally ill. This stigma
causes many people to avoid treatment for their illness. They fear that the
fact of treatment will be exposed and their condition would be made public.
Even if patients seek medical help, they may still limit the information
they disclose in treatment if they are not certain that it will be kept
strictly private.
If patients were assured that their information would be kept private and if
they have a certain degree of control over the information they want to
reveal then more people will seek suitable and effective mental health
treatments. On the contrary, the mentally ill can present a certain degree
of danger to others. In a situation like that, it may become necessary to
disclose the privacy of mental health information to proper authorities.
Substance abuse is a common problem.
However not many people willingly divulge their addiction information to
others. This is again due to the fact that patients do not trust others to
keep their sensitive information private. If substance abuse patients are
convinced that their information will be kept private and disclosed only
with their knowledge and consent, they will be more willing to seek
treatment. Therefore, privacy of information about substance abuse patients
is a very important part in the treatment of this problem.
However, the privacy of substance abuse information should not be
unconditional. Substance abusers may pose a danger to others, including
their own family members. In this case some higher values overcome the high
value placed on privacy of information associated to substance abuse.
Crime-control is not a value that prevails over the privacy of substance
abuse information. To prevent the use of illegal drugs, higher authorities
have increased the price of these drugs. This has caused some of the abusers
to involve in crimes to generate enough money to afford these drugs. But
that does not allow law enforcers to use information about substance abuse
treatment to fight crime. Through a bill protecting the privacy of substance
abuse information, Congress has made a decision that privacy is a higher
value than crime control.
New frontiers in medicine have created new frontiers in the medical privacy
debate. For example, the privacy of genetic information has caused a great
concern over the past few years. Genetic information can expose very
significant and sometimes private information about behaviors, lineage,
health, and health prospects. Since there are many potential uses of genetic
information, and since social standards about the usage of such information
has yet to develop, it is very difficult to make judgments in this regard.
Some businesses, however, have already taken upon themselves to help
consumers maximize advantageous uses of genetic information while protecting
their privacy.
At the same time, some policy makers have proposed to ban certain uses of
genetic information. This allows the consumers to conceal true and relevant
facts about themselves in order to get jobs or attain benefits. Privacy has
not conventionally extended to hiding such information to get advantage over
others. Society should not accept genetic information concealment without
careful considerations. If implemented, a policy advocating genetic
concealment would allow certain individuals to clandestinely move the burden
of their genetics to others. In other fields, cover up of true and pertinent
facts is considered misrepresentation or fraud. The policies that openly and
directly offer assistance and benefits to victims of genetic disease are far
more preferable.
As advancements in genetics improve and prolonged life, our approach to
genetic privacy will develop accordingly. It is almost impossible to predict
what genetics will bring or what the suitable privacy standards for genetic
information will be. Those policy makers who try to set privacy standards
ahead of time risk giving up many advantages of genetic science.
Non-Private Health Information
While it is apparent that some health information is extremely sensitive and
private, it is also important to realize that some health information is not
private or sensitive at all. In fact, some patients may appreciate having
their health information revealed. Victims of car accidents, sports
injuries, or other traumas may benefit from reduced anguish and get true
mental health benefits from public acknowledgement of their pain. Some
medical conditions cannot be kept private as a practical matter because of
the way they occur. Such conditions include skin disorders affecting the
face and hands, nerve and muscle disorders, obesity, and a variety of other
disabilities that are noticeable to all who see the individuals affected.
No comprehensive conclusions can be drawn from the fact that some health
information is not private. It is important to realize that the privacy and
sensitivity of health information falls along a range that is very specific
to the individual conditions of individual patients. This advocates against
broad generalizations or regulatory programs that attempt to categorize all
health information into a single category.
The Importance of Medical Privacy
Medical privacy is significantly important. A survey conducted by The Gallup
Organization revealed that as many as 78% of the people felt that it is very
important that their medical records be kept confidential.7 Maintaining the
privacy of medical information accurately saves lives. This is because
without the guarantee of privacy, patients may avoid life-saving treatments.
Rightly or wrongly, many diseases and their treatments have a degree of
stigma attached to them. Due to this reason, patients may avoid treatment if
they are not completely certain that information about them will remain
confidential. Patients with insurance may stall treatment until their
condition has deteriorated. Some would even prefer to pay for treatment out
of their own pockets in order to avoid exposing themselves to a health care
system that they think would not maintain their privacy.
In addition, patients who do seek treatment may hold back important
information out of fear for divulging private information. This may prevent
patients from acquiring appropriate treatments. Privacy is an independent
concept that people use to retain control over their private lives. In case
of health care privacy is very much a way to improve medical results. People
who can trust their health care system are more likely to seek complete
treatment. In this way, privacy has solid advantages for each person and for
the whole society.
The importance of unrestricted access to Medical Information
Medical health care systems have improved greatly because of the tremendous
advances in both medical technology and information technology. In the past,
people used to rely on only one family doctor and his opinion was considered
to be final. Today, society has become mobile, there have been tremendous
advances in medicine and it has developed into numerous specialties. This
has led to the development of networked health care systems providing all
kinds of treatments.
The free access to medical information has many benefits. Unrestricted
access to medical information allows faster detection of what treatments
work and what do not. Medical information allows epidemiologists to rapidly
locate and seize disease eruptions and viral illnesses. Also, medical
information allows people to get insurances and attain assistance in
treatments. Without certain information, it becomes impossible for health
care systems to provide full treatment to their patients. While it is
acceptable that people should have a certain degree of control over their
personal information, it should not be an
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